In 2021 I spent a decent amount of time with the regional Canadian Mental Health Association in a couple roles. First, I tried volunteering on the distress line and then I got involved with a committee and fundraising. There's no doubt the not-for-profit organizations have struggled during the pandemic, but what struck me was society's attitude toward mental wellness. The stigma of depression, anxiety, PTSD, etc. is slowly eroding away. Yet, I am still trying to help raise funds for assistance. In particular, how is that money spent?

I can look at the annual report and give you specific numbers, but like so many things in our world the answer is always "more money is needed." I promise I am not going to go off on one of my capitalism rants. I also do not need to tell you about how badly mental health is underfunded. Certainly the pandemic has drawn more attention to the issue as we all isolate and no longer have those connections humans desire. There has been some increase into funding mental health because governments recognize that should we find "normal" again, after the pandemic, mental wellness services will be needed.

There, we have more money. Well, that's that. Thanks for reading.

Wait...

The programs in place were already underfunded. Any boost allows organizations to pay their bills. Or perhaps, they can expand counseling resources from two therapists to three. Group homes can get the maintenance they needed 4 years ago. A help line may now have the funds to be 24 hours or start a texting service as well. There is a large need in our communities going unfilled. Naturally, any money going to not-for-profits should expand their services to help more people.

I mentioned that I volunteered at the distress line. It was a very challenging situation for me personally. I entered the training believing that this role would help me keep many of the strategies I have learned in my mental wellness journey. Use it or lose it, practice makes pattern (not perfect!) and all that. I received a great deal of training at no cost to me and the professionals were there during every call I took. Afterwards, I would be debriefed and offered any assistance I may need. If those on site couldn't help me with a troubling call, I could speak to a therapist through a health plan that the organization has. Volunteers getting health benefits? That's cool.

I lasted a few months before I decided that wasn't the position I was ready for at this moment in my life. I may share more of that story in the future, but in the end I do not fit into the crisis model. Again, because we have ignored mental health for so long as a society, these distress lines are incredibly busy. Thus, the need for volunteers. Financially it isn't possible to have psychologists and therapists on the line for 24 hours. The crisis model is used by volunteers to help callers get through the immediate emotions. Moving callers from panic to concern, for example. Then, volunteers and callers come up with strategies should a similar situation happen again. Finally, volunteers offer the contact information for more long-term services. In this model, volunteers can help more callers. Referring people to long-term services means I am not on the phone for 3 hours with someone. It is also important because it doesn't create a dependency. If you are calling me 4 times a day, I cannot help others.

A Thought Experiment

Imagine if we really funded mental health as we did COVID-19? What if those of us volunteering at the crisis line were actually paid for our experience? We value programs to help community wellness, but do we recognize the roles of those within it?

As I said, that fast moving crisis model wasn't for me. Still, others thrived. Many of the volunteers eventually do more training and become paid staff. It's a tough field, though. In my search for someone to talk to I briefly saw a counselor connected to an addictions clinic. The individual took some time off and I was reassigned. When they returned, I saw them for a couple months and then they left permanently. Most of us have encountered issues at work where there just are not enough people on hand to finish projects on time and efficiently. It is very stressful. Now, imagine that in a mental health setting where people come in 8+ hours a day and tell you such intimate and difficult stories. Burnout must be inevitable.

In a similar story, my first attempt at getting help was at a teaching hospital. One day a week they do intakes for a program. They interview everyone that shows up in a 3 hour period. From there, they only admit those with the greatest need. I was turned away. Setting aside my emotions, imagine that as your job. "It sounds like a difficult situation, dealing with suicidal thoughts twice a day. However, at this time we cannot admit you to the program (because I just met someone thinking about killing themselves 4 times a day)." You work at a place so underfunded that you are weekly turning away people who may die. Burnout is inevitable in this situation.

Personally, I believe I could better serve in a group situation where I could share my experience and have those long-term connections with group members. Sometimes this is called peer support. Many organizations have a professional and someone with lived experience lead a mental health group. I have been looking for a space to do this kind of work instead of the distress line work. I feel it is a calling of sort. Of course, I cannot live on volunteer work alone. I must make money. Thus, this blog is somewhat self-serving. It would be amazing if I could find a position like facilitating a group and to receive pay for it. Unfortunately, that's not a reality at this time.

Kudos to all the work we've done as a society to combat the stigma surrounding mental health. There is progress to be proud of, but no amount Silcon Valley startups offering apps for video therapy or phone counseling at a small subscription price are going to move us forward. We need to fund mental health like we fund a military. The private sector is all about profit for shareholders and they cannot be in charge of health, mental health, or education for that matter. We'll get more prescriptions from big pharma, instead of funding people with lived experience and history to help others. Nobody wants to live in a world where we have to subscribe to pay for our life giving organs. Mental health care needs to be taken seriously not only by society, but by government and budgets. The people doing the work do not need achievement awards or LinkedIn reviews. They need to be fairly compensated and respected.

#MentalHealth #MentalWellness #Funding #Watercolor

Photo by Natalie Rhea Riggs on Unsplash

All over the web, creatives took to social networks to curse Patreon recently because of failed transactions. The Verge reported that many payments have been flagged as fraudulent. In my opinion, much of Patreon’s recent problems have occurred because it is growing too fast, like so many venture capital backed startups.

There’s plenty of editorials around the web criticizing Silicon Valley and the get-rich-quick culture surrounding the web. The country club version of Tumblr, Medium has had a number of issues as it looked for ways to appease investors and the old dog in the neighborhood, Twitter, has always been in the negative. The currency of Silicon Valley isn’t Bitcoin, it’s us, the users. Show big numbers of signups and you get funding. Most new startups use the funding to expand the product and get more users, rather than really making a solid product.

As a Patreon user, I wouldn’t think the company has grown too fast. I sat through many monthly video hang times as users begged for the same features over and over. Meanwhile, Patreon kept hiring new people to expand. What were they doing? After a while, each video hang time included information from Patreon’s in-house data gurus. These presentations were to help users learn how to better extract funds from potential patrons, as in “Here’s what’s working!” It was also a bit of cheer leading to exclaim how great Patreon was doing. Of course, data is helpful for Patreon to expand as well.

Too Big

Eventually companies get so big that in order to solve a customer problem you must go on a quest through a phone maze, or Sagan forbid, navigate numerous automated emails to find help. To be fair, how else can you service 2 million users?

In my twenties, I bought a house and put on my big boy pants to look for insurance. I wasn’t finding the “deals” my parents spoke of, like when you have your house and car insurance through the same company. So, I started shopping for each separately. My parents warned me against the slick online companies like Geico and Progressive that were advertising such good rates. My father had the same local insurance agent for most of his life. There was a bond there. My dad could call up Vern and say that a rock hit his car windshield and Vern would take care of it without an out of pocket cost. I wasn’t going to have this familiarity if I went with Progressive, it would just be some woman on the phone in another part of the world quoting my deductible cost.

This is the problem of centralized internet companies getting too big. The humanity gets lost. I’ve had a brief conversation with Patreon CEO Jack Conte and I completely respect his work and vision. I interviewed another team member at Patreon and I call her a friend now. I have no ill will to these people despite what I am writing about Patreon, at the moment. I want them to succeed, but I think being a for profit company is getting in the way of helping people. The demand from shareholders to grow makes the product, and so many others like Google and Facebook, lose effectiveness.

That’s not to say it isn’t possible, but the current climate in the business world is all about more. For example, several years ago Facebook had already captured all of the developing world. The only way for them to get more users was to get Third World countries on their product. So, the company started making sim cards for phones. People in Third World countries could switch the sim card from their mobile carrier out and put in the Facebook card to access a version of the site.

Power in Community

Most cities, states, provinces, and villages were founded by like-minded individuals. The pilgrims came to the New World to accuse each other of being witches without the King interfering in their murderous behavior. Okay, that’s not a great example. My point is that the early web was similar. People who grew orchids got together on a forum site to share ideas and techniques. They may have had an area on the board where non-orchid conversation could happen and they got to know each other further.

Then, there was money found in the world wide web. We got America Online, MySpace, and Facebook. The orchid forum gave way to a more general gardening group chat. Instead of 400 orchid lovers from around the world, you got 4,000,000 people talking about weeds, basil, and hay fever. Instead of the passionate and opinionated conversation between Rosita, Cheryl, and Guillaume, you get a thousand people shouting just to be heard. The humanity is lost.

Communities are still possible online! We don’t all have to join a service just because our friends and family are there. It’s possible to share your pictures and thoughts on your own blog. Is it really that inconvenient to click on a bookmark in a browser? Nope. On Facebook, I am a number lost in an algorithm. On Mastodon, as a Trekkie I can join TenForward.social and share conversation with fellow Star Trek fans. Since Mastodon is built on a protocol (like email), I can also chat with people on other servers of different subjects. This way I don’t need multiple accounts for orchids, Star Trek, and my old high school chums. If I have a problem connecting or I want to donate to ensure the server doesn’t go down, I can contact the administrator directly. Seriously, you can talk to another human!

This is why I think projects like Mastodon are so important. This is the internet the way it was originally designed, information traveling freely, not through corporate silos. You may feel it is no different, either you’re under the thumb of Mark Zuckerberg or the administrator of TenForward.social. However, in one you are the product, in the other you are part of a community sustaining the server. If you don’t like the way it is administered, you can start your own, or just like a web page, you can buy your own Mastodon instance and make the rules.

Sustainable Growth

Of course, even non-profits aren’t perfect. LiberaPay, a similar platform to Patreon has had its problems as well. Though, it is interesting to note that the issues seem to be with the larger payment processing company, similar to Patreon’s many woes. Yet, LiberaPay may be able to weather the storm of discontent and problems because it is growing at a natural pace. Their 10,360 users may be easier to manage through a crisis as LiberaPay grows, than the over 2,000,000 users at Patreon.

Again, this is why I like the model of online communities. There could come a time when there are too many people or opinions on the Mastondon instance of TenForward.social. Perhaps a schism could arise between those who favor the new films and fans of the older films and shows. And so, a new community would be born, maybe Kelvin.timeline. The opposite could happen as well. Just as in the real world when a town grows into area communities and they join together to share resources, communities online could do the same.

Instead of going after users and numbers, we can use the web to connect to other humans, not profits. This is what many Patreon creators have learned. They started a community of fans and patrons who didn’t just support them financially, but interacted with the creators. The connection is what sustains the creators, not the simple number of payments they are receiving.

Patreon and the corporate sites aren’t going away, but you can choose how you want the web of the future to treat you. Do you want to be a commodity bought and sold by corporations, or do you want to be part of a community, sharing ideas and a common humanity?

The last couple of months I’ve exiled myself from Twitter and Facebook. I do miss many individuals, but overall I don’t think those sites have been good for me. I felt like shouting my troubles into the void would be wasting time that I could be using to do something about them.

The thing that has turned so many off from social networks is the current state of the world, the bad news. For me, it was the good news that made coping difficult. Two possibilities occur when I read a positive post- I compare myself to those people sharing the good vibes and get depressed. Or, I believe those people are simply selling a vision to their friends & followers that depicts them in a good light. Now, I realize that both of these interpretations are negative. Yet, I can’t help shaking the feeling that social networks have become less helpful.

In the beginning Twitter was full of early adopters, people trying new things and sharing ideas. Someone would post a status looking for a good resource for teaching pattern recognition to a 6 year old and people on Twitter would pass it along until a teacher from miles away would answer. I don’t doubt these interactions still happen thanks to social media. However, the systems of Twitter and Facebook don’t reward helpfulness. These companies are after profit. Your request for math patterns may get 8–10 retweets or likes before you get the answer you need, but what if a celebrity posts a picture of themselves in a costume for an upcoming superhero film? That’s going to get millions of likes and views. That celebrity is featured in the “people you should follow or friend” lists and becomes an influencer on the network itself. Which of the status posts below do you enjoy?

Optimizing your resume pdf is such terrible fun on a Friday.

— Christopher Sikkenga (@sikkdays) March 10, 2017

or

A Buzzfeed quiz listing uncredited tweets of Trump & @DRUNKHULK and you have to choose who said it.

— Christopher Sikkenga (@sikkdays) January 13, 2017

There’s a culture of comedy on social media, everyone trying to one-up each other with jokes because they’re entertaining. Furthermore, a status post containing controversy is going to get a lot more traction than me describing my continental breakfast. Eventually, we can find ourselves in a race for likes, instead of sharing openly about ourselves. While I don't use Reddit that much, it is interesting that it is organized in categories, or communities. Thus, groups of people with similar ideas can share together without the cloud of other topics and internet memes. The decentralized Mastodon, is also fascinating because people are forming their own communities. Is there hope for the future?

So far, I've shared a very black and white view of social networks. Obviously, there are those people who are genuinely engaging friends within the service. Though, it is hard not to get caught up in the popularity contest because Google, Facebook and Twitter promote and reward that type of content. It was the same back in the early blog days. People shared a part of themselves online and found it freeing. Then, everybody used this bit of code to put a counter on the blog. "Look at all the visitors!" As the hits increased when something funny was shared, bloggers began to gravitate to those kinds of posts. The blogosphere was full of these who-can-post-that-funny-video-first web sites. The original content began to fade away as people wanted more hits.

Content on social networks is increasingly filled with retweets or shared posts from another source. While there’s nothing wrong with sharing, we seem to be burying ourselves behind these black and white issues, causes and internet memes. “I agree, Trump is bad. I will post this funny joke about him.” The thing that gets me, we live in a grey world, not a black and white one. You may despise the funding of Planned Parenthood, but be against the Keystone XL pipeline. Thanks to Trump, states no longer have to fund Planned Parenthood, but he did pass the pipeline. Do you post the meme supporting him or do you post the one against him? Perhaps, you could simply share your own thoughts?

I once saw a speaker who was discussing Hallmark cards. The company has a card for each and every event. It’s downright magic! Except, those cards aren’t for each and every occasion. The speaker said that they have a rule in their family, no store bought cards. The point is to tell someone how you feel using your own words. He and his family make their own cards for birthdays, anniversaries and all the other holidays.

I guess my point is that I can’t live up to a standard that isn’t real. I can’t choose to be black or white. (Look at my hair, it’s grey.) I wasn’t honest with myself and others and it sent me down a dark path. Now, I’m an open book and I need that from the world around me. I don’t expect Twitter or Facebook to change, but I may have to start anew or cull my followers & friends. Honestly, I’m not sure what to do. All I know is that I have been feeling less anxiety and much more healthy since I took my break from social networks. As I work on my mental health, perhaps I will be able to be happy for those sharing positive posts in the future. Maybe I’ll even share some of my own? Until then, my social networks will remain mostly quiet. Since everything is now based on those “popularity” algorithms, you may actually have to visit my social network pages to see if I’ve been around. If you really need me, I’m sure you can find me. In fact, I’d very much like that. Depression is lonely.